This is the name I use to “explain” the many diverse symptoms of the disabling and debilitating illness M.E./C.F.S. to people who stare at me blankly looking for a “sign” somewhere on my person that indicates to them I really am ill, and to try to give this complex and very misunderstood disorder, the recognition ...

Hello my name is Tigger and here you can read about how I think I got M.E/CFS. During my childhood I was never a well person any cold or virus or infection that went round ...

What is CFS/ME and what causes it?

Chronic Fatigue Syndrome/Myalgic Encephalomyelitis is primarily a neurological illness (brain disorder) with variable involvement of other bodily systems including muscles, liver, heart, endocrine or lymphatic glands.

Clinically it is a fluctuating ...

We know it's very hard to understand how a person with ME/CFS feels. Even those of us with ME/CFS ourselves can only begin to imagine how family or friends with ME/CFS are feeling on any particular day.

What makes it all so hard is that people with ME/CFS often LOOK quite well! And they can smile, ...

When using this scale it is important to remember that:

• Flexibility in its use will help all concerned

• There is no predictable pattern to ME/CFS

• Many may fall between each noted percentage

• Fluctuations will occur over short periods of time

...

a) Fatigue. The most common feature for diagnosis is persistent fatigue - a fatigue unlike anything that has been experienced before and quite unlike the usual tiredness that one might feel after a busy day. Although fatigue must be present for a diagnosis, it isn't necessarily the worse symptom (as can be seen in the OU/AYME report 'Speaking Up') ...